6th Annual ECD Patient & Family Gathering Orlando, FL
Orlando International ECD Patient & Family Gathering Group Picture 2018
Patient & Family Gathering Summary
Programs with Gathering Agenda
Presentation
| Presenter | Presentation Slides | Video |
|---|---|---|
| Eric Jacobsen, MD, PhD | The Drug Trial Process | The Drug Trial Process - Eric Jacobsen |
| Ronald S. Go, MD | Treatment Options for ECD | ECD Treatment Options - Ronald Go |
| Cassie Nguyen, PharmD, BCOP | Drug Management | Drug Management for ECD Patients - Cassie Nguyen |
| Eli L. Diamond, MD | ECD and the Brain | ECD Patient Registry - Eli Diamond |
| Allison Mofsky, MA, CCC-SLP | Speech and Swallowing | |
| Fady Hannah-Shmouni, MD, DABIM FRCPC | Endocrine Dysfunction in ECD | Endocrine Dysfunction - Fady Hannah-Shmouni |
| Patty Bobryk, MHS, PT, MSCS, ATP | ECD and Exercise | |
| Colleen Scordato, DPT, Cert. MDT | Physical Therapy | Physical Therapy - Colleen Scordato |
| Rebecca Donnenberg | Nutrition for ECD Patients | Nutrition for ECD Patients - Rebecca Donnenberg |
| Eli L. Diamond, MD | ECD Registry Update |
Photographs
Reception Photos
The following photos were taken during the ECD Patient & Family Gathering Reception with medical professionals and ECD families on November 15, 2018 at the Orlando Health Regional Medical Center. Thank you to all participants for attending and engaging with the community. You can find more photos on Facebook under the tag searches #ECDGA18 or directly in our ECDGA Facebook page.
Patient Meeting Photos
The following photos were taken during the ECD Patient & Family Gathering meeting on November 16, 2018 the Orlando Health – Orlando Regional Medical Center. Thank you to all attendees for participating during the meeting and social times, allowing great support and connections within this community. You can find more photos on Facebook under the tag searches #ECDGA18 or directly in our ECDGA Facebook page. Please join us again on July 12, 2019 in Milan, Italy!
