The Erdheim-Chester Disease Global Alliance is pleased to announce that the video from our recent Patient & Family Gathering and Simposio medico are now available to view.

Each year, these eventi bring together patients, caregivers, family members, researchers, and medical professionals from around the world to share knowledge, experiences, and the latest developments related to Erdheim-Chester Disease.

Whether you attended the eventi and would like to revisit a presentation or were unable to unisciti a noi this year, these recordings provide an opportunity to learn from leading experts and hear important discussions from our global ECD community.

Highlights include:

  • Presentations from internationally recognized ECD specialists
  • Research updates and scientific developments
  • Question and answer discussions
  • Insights from the annual Simposio medico

We are grateful to all of the speakers, attendees, volunteers, and supporters who helped make these eventi a success.

To access the video, visit:

2026 Patient and Family Gathering Playlist

2026 Medical Symposium Playlist

Thank you for being part of the ECD community and for helping us advance awareness, support, education, and research related to Erdheim-Chester Disease.