Online Connection with Your Community

The ECD Global Alliance hosts virtual online chats each month for anyone in the ECD community. This includes patients, caregivers/carers, family members, medical personnel, researchers, etc.

For those who register with the ECD Global Alliance, you will receive an email announcing each chat session relevant to your role.  If you have not yet registered with the group, we recommend you do so here to stay connected and informed.

The chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.

Previously, the ECDGA conducted typed, live online chats for the community. Summaries of previous chat sessions were compiled and archived at the bottom of this page.

Please read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar.

NOTE: Check your time zone here: Time Zone Converter.

There will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.

English-Speaking Groups

The following group chats will be available in 2024: ECD Patients, ECD Caregivers, ECD Grief Group.

Register Here

Register Here


Register Here



International Groups

Canadian Community Chat

Register Here:


Chat para los que hablan español 


Registrese aquí:  


Deutschsprachiger Chat

Hier registrieren:


Australian and New Zealand Chat

Register Here:


Chat francophone

Inscrivez-vous ici:





Chat virtuale in italiano

QUANDO: mercoledì 14 giugno 2023 alle 19:00 ora italiana

Questo sito Web di Time Zone Converter ti aiuterà a confermare l’ora corretta della riunione per il luogo in cui vivi:

DOVE: Online, utilizzando la piattaforma Zoom. (NOTA: NON è richiesto un account Zoom per partecipare, ma dovrai registrarti per ricevere il link per partecipare. Potrai accedere con un solo un dispositivo utilizzando il link, di conseguenza ogni persona dovrà registrarsi.)

COSA: Questo sarà un incontro virtuale informale in cui potremo parlare, ascoltare e incontrarci con gli altri nella comunità.

Nessun costo!


Si prega di rivedere il regolamento prima di partecipare alla riunione virtuale.



Last updated: July 19, 2024

Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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