- Dette arrangement har allerede funnet sted.
Det 11. årlige ECD-medisinske symposiet – Birmingham 2026
Erdheim-Chester Disease Global Alliance Announces 2026 Medical Symposium
Birmingham, AL — The Erdheim-Chester Disease Global Alliance (ECDGA) and UAB School of Medicine invites healthcare professionals and researchers.
- Medical Symposium: April 30–May 2, 2026
Torsdag 30. april 2026
Samling for pasienter og pårørende: 8:00am-4:30pm
Sted: Marnix E. Heersink Conference Center at University of Alabama at Birmingham
Celebration Dinner: 6:00pm-8:00pm
Sted: Hilton ved UAB Downtown
Friday, May 1, 2026
Medical Symposium: 8:00am-5:00pm
Sted: Marnix E. Heersink Conference Center at University of Alabama at Birmingham
Medical Symposium Medical Reception: 6:00pm-8:00pm
Sted: Marnix E. Heersink Conference Center at University of Alabama at Birmingham
Saturday, May 2, 2026
ECD Care Center Meeting: 8:00am-11:00am
Sted: UAB Cancer Center
Dette arrangementet vil samle det globale fellesskapet rundt Erdheim-Chester-syndromet med ledende medisinske eksperter for å dele den nyeste forskningen, kliniske innsikter og ressurser for fellesskapet. Deltakerne kan se frem til opplæringssesjoner, muligheter til å knytte kontakter med andre i samme situasjon, samt oppdateringer om nye behandlingsformer og pasientomsorg.
Ytterligere opplysninger om hotellet og høydepunktene i programmet vil bli offentliggjort i løpet av de kommende månedene.
Dagsorden
| Tid | Subject | Programleder |
|---|---|---|
| 8:00 am | Registration & light breakfast | |
| 8:30 am | Welcome to Birmingham and the 11th Annual Erdheim-Chester Disease International Conference | Gaurav Goyal University of Alabama at Birmingham, Birmingham, AL USA |
| Keynote Address | ||
| 8:45 am | Diversity and Degeneration in Neurohistiocytic Disease | Nicole Coufal University of California, San Diego USA |
| 9:25 am | Pause | |
| Morning Abstract Presentations Session 1: Cells, Clones & Circuits: Where Histiocytosis Begins (and Persists) | ||
| 9:35 am | ARAF Mutations Drive Histiocytic Neoplasms In Vivo and Provide Insights into Cellular Origin | Benjamin Durham Rutgers Cancer Institute, Robert Wood Johnson School of Medicine, Brunswick, NJ |
| 9:50 am | Tracking BRAF V600E Persistence under MEK Inhibition in Histiocytoses: a B-cell–enriched signal | Julien Haroche Department of Internal Medicine & E3M Institute, Pitié-Salpêtrière Hospital, AP-HP – Sorbonne University, Paris, France |
| 10:05 am | Distribution of MAP2K1 Variants Across Peripheral Blood Cells in Erdheim-Chester Disease and Other Histiocytoses | Irena Ungureanu Ambroise-Paré Hospital, Pathology Department, Boulogne-Billancourt, France |
| 10:20 am | The Clonal Origin and Evolution of High-Risk Multisystem Histiocytosis in Adults | Matthew Collin Newcastle University, United Kingdom |
| 10:35 am | Networking Break | |
| Morning Abstract Presentations Session 2: Genotype → Therapy: Biomarkers, Responses, and New Vulnerabilities | ||
| 10:50 am | KRAS Mutations in Histiocytic Neoplasms: Mutation Spectrum and Response to MEK Inhibition | Dongni Yi Mayo Clinic, Rochester, MN, USA |
| 11:05 am | Cyclin D1 Overexpression Drives Replication Stress and Creates Therapeutic Vulnerabilities in Histiocytic Neoplasms | Dongni Yi Mayo Clinic, Rochester, MN, USA |
| 11:20 am | Clonal Hematopoiesis Predicts Response to Interferon-α in Erdheim-Chester Disease and Myeloproliferative Neoplasms | Jérôme Razanamahery Dijon University Hospital, France |
| 11:35 am | Impact of Additional Genetic Variants in the Course of Erdheim-Chester Disease… a Multicentric Longitudinal Study of 445 French Patients | Félicien Triboulet Pitié-Salpêtrière hospital, Sorbonne University, Paris, France |
| 11:50 am | Group Photo | |
| 12:00 pm | Lunsj | |
| Afternoon Abstract Presentations Session 3: Pixels to Patterns: ECD and Xanthogranuloma | ||
| 1:00 pm | Central Nervous System Imaging Abnormalities in Erdheim–Chester Disease: A Systematic Review | Mustafa Abomohsen Brookdale University Hospital and Medical Center, Brooklyn, NY USA |
| 1:15 pm | Musculoskeletal System Imaging Abnormalities in Erdheim–Chester Disease: A Systematic Review | Mustafa Abomohsen Brookdale University Hospital and Medical Center, Brooklyn, NY USA |
| 1:30 pm | Patterns of Presentation and Outcomes in Adult Xanthogranuloma | Guneet Janda Mayo Clinic, Rochester, MN, USA |
| 1:45 pm | Networking Break | |
| Afternoon Abstract Presentations Session 4: Care in the Real World: Treatment Patterns and Survivorship | ||
| 2:00 pm | Real World Frontline Systemic Anti-Cancer Treatment Patterns and Outcomes in Erdheim–Chester Disease | Carla Isabel Borre Mayo Clinic, Rochester, MN, USA |
| 2:15 pm | Burden of Chronic Health Conditions After Diagnosis of Erdheim–Chester Disease (ECD): Early Results from the Histiocytic Disorder Survivor Study | Gaurav Goyal University of Alabama at Birmingham, Birmingham, AL USA |
| 2:30 pm | Destombes-Rosai-Dorfman Disease: Clinical, Molecular Characteristics and Treatment Response: data from a retrospective cohort of 107 patients | Julien Haroche Department of Internal Medicine & E3M Institute, Pitié-Salpêtrière Hospital, AP-HP – Sorbonne University, Paris, France |
| 2:45 pm | Considerations for Assessment and Treatment of Neuropsychiatric Symptoms in ECD | Anneka Johnston Rush University Medical Center, Chicago IL |
| Poster Presentations and Networking | ||
| 3:00 pm | Erdheim-Chester Disease (ECD) is a Rare Histiocytic Neoplasm of Non-Langerhans Cell Histiocytosis | Abdalla Bowirrat Ariel University, Israel |
| Diagnostic challenges in mixed ErdheimChester Disease and Langerhans Cell Histiocytosis in a 54-year-old male | Sameer Andani Mofitt Cancer Center & University of South Florida |
|
| A Mycosis Fungoides-like Drug Reaction Rapidly Resolving Following Switch from BRAF Inhibitor to MEK Inhibitor Monotherapy in Erdheim-Chester Disease | Saipriya Ayyar University of Cincinnati/UC Health, Cincinnati OH |
|
| Multimodality Imaging in Erdheim–Chester Disease: Radiologic Insights from Pediatric and Adult Cases | Priyanka Naranje All India Institute of Medical Sciences, New Delhi, India |
|
| Cardiovascular System Imaging Abnormalities in Erdheim-Chester Disease: A Systematic Review | Mustafa Abomohsen Brookdale University Hospital and Medical Center, Brooklyn, NY USA |
|
| BRAF-Positive Erdheim–Chester Disease with Progressive Pulmonary and Vascular Involvement Successfully Treated with Vemurafenib: A Case Report | Hulya Yilmaz Tekinhatun Diyarbakir Gazi Yasargil Training and Research Hospital, Turkey |
|
| Concurrent Erdheim-Chester Disease and Classical Hodgkin Lymphoma with unexpected response to lymphoma-directed therapy | Rebecca Denson New York Presbyterian-Weill Cornell Medicine, New York, NY |
|
| Abdominal Imaging Abnormalities in Erdheim-Chester Disease: A Systematic Review | Mustafa Abomohsen Brookdale University Hospital and Medical Center, Brooklyn, NY USA |
|
| Prevalence and distribution of ErdheimChester Disease in the UK estimated from referral to a National Advisory Panel | Matthew Collin Newcastle University, United Kingdom |
|
| Challenging Case Study | ||
| 3:45 pm | All that glitters: retro-orbital xanthogranuloma or ECD? | Matthew Collin Newcastle University, United Kingdom |
| Challenging Case Study | ||
| 4:15 pm | The Clue Was the Blood Pressure: Atypical Erdheim–Chester Disease | Jithma Abeykoon Mayo Clinic, Rochester, MN, USA |
| Closing Remarks & Student Abstract Award | ||
| 4:45 pm | ECD Global Alliance into the Future | Jerome Henson Executive Director, ECD Global Alliance, DeRidder, LA USA |
| 4:55 pm | Junior Investigator – Best Student Presentation Award | Oshrat Hershkovitz-Rokah Ariel University & Assut |
MERKNAD: Register before February 1st to take advantage of the early bird registration cost! Save $200 USD and register for only $300 USD!
Mark Heaney-prisen for bevisstgjøring og prisen for samfunnsengasjement
February 1st, 2026 – Last day to submit your nomination for the Mark Heaney Awareness Award & Community Champion Award .
- Vennligst send inn forslagene deres her.
- Mark Heaney-prisen for bevisstgjøring. Nominér en helsearbeider som arbeider for å forbedre livskvaliteten til ECD-pasienter ved å øke bevisstheten om sykdommen i helsepersonellmiljøet.
- «Community Champion Award». Nominér hvem som helst (pasient, omsorgsperson, helsepersonell, venn osv.) som har brukt sin fritid på å bidra til å forbedre livskvaliteten for alle som er berørt av ECD.
Oral / Poster Presentation Abstracts
February 1, 2026- Abstracts Due.
- Abstract submissions for the Medical Symposium on 1 May, are accepted her Please submit abstracts for oral and/or poster presentation. This is a great opportunity to share your work and the work of your colleagues. Please let them know of the opportunity.
Reisestipendier
Reisestøtte – Glenn Padnick-minnefondet for reisestøtte tar nå imot søknader til ECDGA-konferansen i 2026.
Glenn Padnick levde et rikt og meningsfylt liv mens han levde med Erdheim-Chester-syndromet (ECD) i flere tiår. Fra 2011 til 2022 var han med urokkelig engasjement medlem av styret i ECD Global Alliance, og sørget alltid for at pasientenes stemmer og behov sto i sentrum for alle beslutninger.
Til ære for Glenns livsgjerning preget av tjeneste og medmenneskelig omsorg har familien hans generøst opprettet «Glenn Padnick Memorial Travel Fund». Dette fondet yter økonomisk støtte for å hjelpe pasienter, omsorgspersoner og helsepersonell med å delta på den årlige ECD-konferansen – spesielt de som ellers ikke ville ha hatt mulighet til å delta på grunn av økonomiske begrensninger.
Det er nå åpent for søknader om reisestøtte til ECD-konferansen i 2026. Midlene er begrenset, og det vil bli gitt prioritet til personer som aldri har deltatt på arrangementet før. Målet vårt er å gjøre denne muligheten tilgjengelig for så mange medlemmer av fellesskapet som mulig, innenfor rammen av de tilgjengelige ressursene.
Søknadsfrist: 1. februar 2026 Beskjed om tildeling: Senest 1. mars 2026
Søk her: Søknad om midler fra Glenn Padnick-minnefondet for reiseutgifter.
Informasjon om konferansehotell og reise
Konferansehotell
Hilton Birmingham ved UAB
808 20th Street South
Birmingham, AL 35205
Telefon: +1 (659) 251-1934
Det er reservert et antall rom på Hilton Birmingham ved UAB for konferansedeltakerne.
Rom må reserveres senest 6. april 2026 for å få gruppeprisen.
Hvis du har problemer med å bestille rom, kan du ta kontakt med Simon Hill på Hilton Birmingham Downtown. Nummeret hans er 205-910-1970 og e-postadressen hans er simon.hill@hiltoncom.
Transport til flyplassen
Birmingham–Shuttlesworth internasjonale lufthavn (BHM)
Det tilbys gratis transport fra Birmingham lufthavn til hotellet, og denne tjenesten drives direkte av Hilton Downtown ved UAB.
Slik bruker du skyttelbussen:
- Hent bagasjen din.
- Ring hotellet på 205-933-9000 for å bestille transport.
- Gå til dør #4L og vent på bussen merket “Hilton”.”
Reise via Atlanta
Hartsfield–Jackson Atlanta International Airport (ATL) ligger omtrent 3 timer fra Birmingham og tilbyr direkte internasjonale flyvninger til de fleste land. Det tilbys transporttjenester mellom flyplassen i Atlanta og Birmingham for reisende som ankommer via ATL.
Kontakt:
Den globale alliansen for Erdheim-Chester-syndromet
E-post: [email protected]
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