Living with Erdheim-Chester Disease (ECD) can be overwhelming. As a rare and complex condition, ECD often leaves patients and caregivers feeling isolated, uncertain, and unsure where to turn. The ECD Global Alliance (ECDGA) support network exists to change that—by...
We are pleased to announce that registration is now open for the 2026 ECD Global Alliance Medical Symposium in Birmingham, Alabama. This important annual event brings together clinicians, researchers, and medical professionals dedicated to advancing the understanding...
The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce the appointment of Jerome Henson as its new Executive Director. Jerome brings with him more than 30 years of leadership experience in education, having served as a teacher, principal, and...
Created using the Donation Thermometer plugin https://wordpress.org/plugins/donation-thermometer/.$30,000.00Raised $30,000.00 towards the $30,000.00 target.$30,000.00Raised $30,000.00 towards the $30,000.00 target.100.00%In just one week, the ECDGA $30,000 Impact...
We’re already 30% of the way toward unlocking our $30,000 new Impact Challenge match, and it’s all thanks to supporters like you. $25 becomes $50 $50 becomes $100 Every dollar matters. Every dollar helps us spread awareness, fund research, and support patient...
We’re excited to share a new animated short featuring Ziggy the Zebra, the ECD community’s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and...
