Lid locaties
ECD Patient Locations
The following lists represent the number of patients currently registered with the ECD Global Alliance; to date, there have been a total of 900 patients registered with the organization. We believe there are other patients in the world that are either not yet diagnosed or may not be aware of the ECDGA and therefore have not registered. We encourage all diagnosed ECD patients to register with the organization here at no cost. For those searching for a diagnosis, please contact us. We are happy to help you connect with physicians who can aid in a correct diagnosis.
| Geregistreerde locatie | # Patiënten |
| Algerije | 1 |
| Antarctica | 1 |
| Argentinië | 6 |
| Aruba | 1 |
| Australië | 38 |
| Oostenrijk | 1 |
| Azerbeidzjan | 1 |
| Bahrein | 1 |
| België | 7 |
| Brazilië | 40 |
| Bulgarije | 3 |
| Canada | 37 |
| Chili | 6 |
| China | 15 |
| Colombia | 4 |
| Cuba | 1 |
| Cyprus | 1 |
| Denemarken | 2 |
| Egypte | 2 |
| Frankrijk | 42 |
| Georgië | 1 |
| Duitsland | 26 |
| Griekenland | 3 |
| Hongarije | 2 |
| India | 7 |
| Iran (Islamitische Republiek) | 3 |
| Irak | 1 |
| Ierland | 2 |
| Israël | 15 |
| Italië | 28 |
| Japan | 2 |
| Kazachstan | 2 |
| Korea | 1 |
| Kirgizië | 1 |
| Libanon | 1 |
| Libië | 1 |
| Mexico | 8 |
| Moldavië, Republiek | 1 |
| Marokko | 1 |
| Namibië | 1 |
| Nepal | 3 |
| Nederland | 11 |
| Nieuw-Zeeland | 7 |
| Noord-Macedonië | 1 |
| Noorwegen | 6 |
| Pakistan | 3 |
| Panama | 1 |
| Paraguay | 1 |
| Peru | 2 |
| Filippijnen | 2 |
| Polen | 2 |
| Portugal | 4 |
| Roemenië | 4 |
| Russische Federatie | 3 |
| Saoedi-Arabië | 3 |
| Singapore | 1 |
| Slovenië | 1 |
| Zuid-Afrika | 2 |
| Spanje | 22 |
| Zweden | 3 |
| Zwitserland | 5 |
| Thailand | 1 |
| Trinidad en Tobago | 1 |
| Tunesië | 1 |
| Kalkoen | 10 |
| Turkmenistan | 1 |
| Oekraïne | 2 |
| Verenigde Arabische Emiraten | 2 |
| Verenigd Koninkrijk van Groot-Brittannië en Noord-Ierland | 51 |
| Verenigde Staten van Amerika | 425 |
| Uruguay | 2 |
| Totaal | 900 |
| Mannelijk | 61% |
| Vrouw | 39% |
| Geregistreerd VS staat/gebied Locatie | # Patiënten |
| Alabama | 4 |
| Alaska | 1 |
| Arizona | 9 |
| Californië | 60 |
| Colorado | 13 |
| Connecticut | 5 |
| Delaware | 2 |
| District Colombia | 3 |
| Florida | 27 |
| Georgië | 12 |
| Hawaï | 3 |
| Idaho | 2 |
| Illinois | 16 |
| Indiana | 10 |
| Iowa | 9 |
| Kansas | 2 |
| Kentucky | 8 |
| Louisiana | 2 |
| Maine | 5 |
| Maryland | 9 |
| Massachusetts | 7 |
| Michigan | 18 |
| Minnesota | 9 |
| Mississippi | 3 |
| Missouri | 13 |
| Nebraska | 3 |
| Nevada | 2 |
| New Hampshire | 2 |
| New Jersey | 10 |
| Nieuw-Mexico | 1 |
| New York | 23 |
| Noord-Carolina | 6 |
| Noord-Dakota | 1 |
| Ohio | 16 |
| Oklahoma | 2 |
| Oregon | 4 |
| Pennsylvania | 22 |
| Zuid-Carolina | 4 |
| Zuid-Dakota | 3 |
| Tennessee | 7 |
| Texas | 15 |
| Vermont | 2 |
| Virginia | 13 |
| Washington | 17 |
| West-Virginia | 1 |
| Wisconsin | 7 |
| Wyoming | 1 |
| Puerto Rico | 3 |
| Onbekende staat | 8 |
| Totaal | 425 |