Localisation des membres
Localisation des patients atteints d’ECD
Les listes suivantes indiquent le nombre de patients actuellement inscrits auprès de l’ECD Global Alliance ; à ce jour, l’organisation a enregistré un total de 900 patients. Nous pensons qu’il existe d’autres patients dans le monde qui ne sont pas encore diagnostiqués ou qui ne connaissent pas l’ECDGA et ne se sont donc pas inscrits. Nous encourageons tous les patients atteints d’ECD diagnostiqués à s’inscrire auprès de l’organisation ici, gratuitement. Si vous êtes à la recherche d’un diagnostic, veuillez nous contacter. Nous serons ravis de vous aider à entrer en relation avec des médecins pouvant contribuer à établir un diagnostic correct.
| Registered Location | # Patients |
|---|---|
| Algeria | 4 |
| Antarctica | 1 |
| Argentina | 10 |
| Armenia | 1 |
| Aruba | 1 |
| Australia | 46 |
| Austria | 3 |
| Azerbaijan | 2 |
| Bahrain | 1 |
| Belgium | 9 |
| Brazil | 48 |
| Bulgaria | 3 |
| Canada | 50 |
| Chile | 9 |
| China | 40 |
| Colombia | 7 |
| Cuba | 1 |
| Cyprus | 1 |
| Denmark | 2 |
| Egypt | 2 |
| France | 48 |
| Georgia | 1 |
| Germany | 45 |
| Ghana | 1 |
| Greece | 5 |
| Hungary | 4 |
| India | 14 |
| Indonesia | 2 |
| Iraq | 1 |
| Ireland | 3 |
| Islamic Republic of Iran | 1 |
| Israel | 17 |
| Italy | 37 |
| Japan | 3 |
| Kazakhstan | 2 |
| Kyrgyzstan | 1 |
| Lebanon | 1 |
| Macedonia | 1 |
| Malaysia | 1 |
| Mexico | 12 |
| Morocco | 1 |
| Namibia | 1 |
| Nepal | 4 |
| Netherlands | 20 |
| New Zealand | 10 |
| Norway | 8 |
| Pakistan | 4 |
| Panama | 1 |
| Paraguay | 1 |
| Peru | 2 |
| Philippines | 2 |
| Poland | 3 |
| Portugal | 6 |
| Republic of Korea | 1 |
| Romania | 6 |
| Russian Federation | 2 |
| Saudi Arabia | 4 |
| Singapore | 2 |
| Slovenia | 1 |
| South Africa | 4 |
| Spain | 29 |
| Sweden | 5 |
| Switzerland | 7 |
| Thailand | 1 |
| Tonga | 1 |
| Trinidad and Tobago | 1 |
| Tunisia | 1 |
| Turkey | 15 |
| Turkmenistan | 1 |
| Ukraine | 3 |
| United Arab Emirates | 2 |
| United Kingdom of Great Britain and Northern Ireland | 63 |
| United States of America | 528 |
| Uruguay | 2 |
| Yemen | 1 |
| Total | 1184 |
| Male | 61% |
| Female | 39% |
| Registered US State/Territory Location | # Patients |
|---|---|
| Alabama | 5 |
| Alaska | 1 |
| Arkansas | 2 |
| Arizona | 9 |
| California | 68 |
| Colorado | 16 |
| Connecticut | 5 |
| Delaware | 3 |
| District of Columbia | 3 |
| Florida | 38 |
| Georgia | 15 |
| Hawaii | 4 |
| Idaho | 4 |
| Illinois | 23 |
| Indiana | 10 |
| Iowa | 14 |
| Kansas | 4 |
| Kentucky | 9 |
| Louisiana | 2 |
| Maine | 5 |
| Maryland | 10 |
| Massachusetts | 9 |
| Michigan | 20 |
| Minnesota | 10 |
| Mississippi | 4 |
| Missouri | 13 |
| Montana | 1 |
| Nebraska | 5 |
| Nevada | 2 |
| New Hampshire | 1 |
| New Jersey | 9 |
| New Mexico | 1 |
| New York | 37 |
| North Carolina | 11 |
| North Dakota | 1 |
| Ohio | 14 |
| Oklahoma | 2 |
| Oregon | 7 |
| Pennsylvania | 25 |
| South Carolina | 5 |
| South Dakota | 4 |
| Tennessee | 10 |
| Texas | 19 |
| Utah | 2 |
| Vermont | 2 |
| Virginia | 15 |
| Washington | 23 |
| West Virginia | 3 |
| Wisconsin | 12 |
| Wyoming | 1 |
| Puerto Rico | 3 |
| Unknown State | 8 |
| Total | 528 |