Localisation des membres
ECD Patient Locations
The following lists represent the number of patients currently registered with the ECD Global Alliance; to date, there have been a total of 900 patients registered with the organization. We believe there are other patients in the world that are either not yet diagnosed or may not be aware of the ECDGA and therefore have not registered. We encourage all diagnosed ECD patients to register with the organization here at no cost. For those searching for a diagnosis, please contact us. We are happy to help you connect with physicians who can aid in a correct diagnosis.
| Emplacement enregistré | # Nombre de patients |
| Algérie | 1 |
| Antarctique | 1 |
| Argentine | 6 |
| Aruba | 1 |
| Australie | 38 |
| Autriche | 1 |
| Azerbaïdjan | 1 |
| Bahreïn | 1 |
| Belgique | 7 |
| Brésil | 40 |
| Bulgarie | 3 |
| Canada | 37 |
| Chili | 6 |
| Chine | 15 |
| Colombie | 4 |
| Cuba | 1 |
| Chypre | 1 |
| Danemark | 2 |
| Égypte | 2 |
| France | 42 |
| Géorgie | 1 |
| Allemagne | 26 |
| Grèce | 3 |
| Hongrie | 2 |
| Inde | 7 |
| Iran (République islamique d’) | 3 |
| Irak | 1 |
| Irlande | 2 |
| Israël | 15 |
| Italie | 28 |
| Japon | 2 |
| Kazakhstan | 2 |
| Corée, République de | 1 |
| Kirghizistan | 1 |
| Liban | 1 |
| Libye | 1 |
| Mexique | 8 |
| Moldavie, République de | 1 |
| Maroc | 1 |
| Namibie | 1 |
| Népal | 3 |
| Pays-Bas | 11 |
| Nouvelle Zélande | 7 |
| Macédoine du Nord | 1 |
| Norvège | 6 |
| Pakistan | 3 |
| Panama | 1 |
| Paraguay | 1 |
| Pérou | 2 |
| Philippines | 2 |
| Pologne | 2 |
| Portugal | 4 |
| Roumanie | 4 |
| Fédération de Russie | 3 |
| Arabie Saoudite | 3 |
| Singapour | 1 |
| Slovénie | 1 |
| Afrique du Sud | 2 |
| Espagne | 22 |
| Suède | 3 |
| La Suisse | 5 |
| Thaïlande | 1 |
| Trinité et Tobago | 1 |
| Tunisie | 1 |
| Turquie | 10 |
| Turkménistan | 1 |
| Ukraine | 2 |
| Émirats arabes unis | 2 |
| Royaume-Uni de Grande-Bretagne et d’Irlande du Nord | 51 |
| États-Unis d’Amérique | 425 |
| Uruguay | 2 |
| Total | 900 |
| Hommes | 61% |
| Femmes | 39% |
| Enregistré État/Territoire des États-Unis Emplacement | # Patients |
| Alabama | 4 |
| Alaska | 1 |
| Arizona | 9 |
| Californie | 60 |
| Colorado | 13 |
| Connecticut | 5 |
| Delaware | 2 |
| District de Columbia | 3 |
| La Floride | 27 |
| Géorgie | 12 |
| Hawaï | 3 |
| Idaho | 2 |
| L’Illinois | 16 |
| Indiana | 10 |
| Iowa | 9 |
| Kansas | 2 |
| Kentucky | 8 |
| Louisiane | 2 |
| Maine | 5 |
| Maryland | 9 |
| Massachusetts | 7 |
| Michigan | 18 |
| Minnesota | 9 |
| Mississippi | 3 |
| Missouri | 13 |
| Nebraska | 3 |
| Nevada | 2 |
| New Hampshire | 2 |
| New Jersey | 10 |
| Nouveau Mexique | 1 |
| New York (en anglais) | 23 |
| Caroline du Nord | 6 |
| Dakota du Nord | 1 |
| Ohio | 16 |
| Oklahoma | 2 |
| Oregon | 4 |
| Pennsylvanie | 22 |
| Caroline du Sud | 4 |
| Dakota du Sud | 3 |
| Tennessee | 7 |
| Texas | 15 |
| Vermont | 2 |
| Virginie | 13 |
| Washington | 17 |
| Virginie occidentale | 1 |
| Wisconsin | 7 |
| Le Wyoming | 1 |
| Porto Rico | 3 |
| État inconnu | 8 |
| Total | 425 |