9th Annual ECD Patient & Family Gathering Seattle, WA

The 2024 Patient & Family Gathering (PFG) brought together 68 patients and family members from 3 countries. The patient/family community was joined by 42 clinicians and scientists who are passionate about caring for patients and learning more about Erdheim-Chester Disease. Thirteen clinicians/scientists provided talks on ECD and ECD support needs. A Celebration Dinner with all attendees was enjoyed, allowing time for fellowship and recognition of community leaders who dedicate their time and ressources afin d'apporter son soutien à la communauté ECD. Vous trouverez ci-dessous de plus amples informations sur les activités et les présentations du PFG, ainsi que des photos de la conférence.