10th Annual ECD Patient & Family Gathering Barcelona, Spain
Barcelona Patient & Family Gathering Group Picture 2025
患者及家属聚会总结
The 2025 Patient & Family Gathering (PFG) brought together 57 patients and family members from 16 countries. The patient/family community was joined by 37 clinicians and scientists who are passionate about caring for patients and learning more about Erdheim-Chester Disease. Sixteen clinicians/scientists provided talks on ECD and ECD support needs. A Celebration Dinner with all attendees was enjoyed, allowing time for fellowship and recognition of community leaders who dedicate their time and 资源 以支持早期儿童发展(ECD)界。请参阅以下信息,了解有关PFG活动和演讲的更多详情,以及会议照片。.






