Topic: Managing ECD Pain & Fatigue

Speaker: Kevin O’Brien
RN, MS-CRNP, Nurse Practitioner,
Clinical Investigator, Genome Research Institute,
美国国立卫生研究院

Date: Thursday, June 25, 2026
Time: 1:00 PM CDT

Kevin O’Brien is a nurse practitioner and clinical investigator at the National Human Genome Research Institute (NHGRI) of the National Institutes of Health in Bethesda, Maryland. He earned his Bachelor of Science degree from Johns Hopkins University and his Master of Science and Nurse Practitioner degree from the University of Maryland.

Kevin has played a key role in NHGRI clinical research, including protocol 15-HG-0006, a clinical trial investigating dabrafenib and trametinib in BRAF-positive patients with Erdheim-Chester disease (ECD), as well as the Natural History of ECD study. Register Here