Topic: Managing ECD Pain & Fatigue
June 25, 2026
1:00 PM – 2:00 PM CDT
1:00 PM – 2:00 PM CDT
Start date & time in your local time zone.
June 25, 2026 1:00 PM CDT
June 25, 2026 1:00 PM CDT
Speaker: Kevin O’Brien
RN, MS-CRNP, Nurse Practitioner,
Clinical Investigator, Genome Research Institute,
National Institutes of Health
Date: Thursday, June 25, 2026
Time: 1:00 PM CDT
Kevin O’Brien is a nurse practitioner and clinical investigator at the National Human Genome Research Institute (NHGRI) of the National Institutes of Health in Bethesda, Maryland. He earned his Bachelor of Science degree from Johns Hopkins University and his Master of Science and Nurse Practitioner degree from the University of Maryland.
Kevin has played a key role in NHGRI clinical research, including protocol 15-HG-0006, a clinical trial investigating dabrafenib and trametinib in BRAF-positive patients with Erdheim-Chester disease (ECD), as well as the Natural History of ECD study. Register Here
