第五屆年度國際 ECD 和家庭聚會

April 26, 2017
11:00 PM – 10:59 PM CDT

Start date & time in your local time zone.
April 26, 2017 11:00 PM CDT

位置： 紐約州紐約市

感謝 150 名參與者使今年的 ECD 患者聚會取得巨大成功！患者、家庭成員、護士、研究團隊和眾多醫生參加了在紐約舉行的2017年患者和家庭聚會。出席者瞭解了最新的研究、治療和護理管理技術，包括與 ECD 共存的心理影響。有關更多資訊，請參閱下面的活動材料。

演示幻燈片

添加了以下演示文稿，希望它們能幫助有興趣瞭解更多關於 ECD的患者、家庭和醫生。 ECDGA 感謝醫學界為改善對 ECD 患者的護理所做的努力和貢獻。

Presenter	Slides	Contact Information
Craig Blinderman, MD, MA, FAAHPM	Pain management in Erdheim-Chester Disease	Columbia University Medical Center/New York Presbyterian Hospital E-mail: cdb21@columbia.edu \| Telephone: 1.212.305.3071
Eli L. Diamond, MD	ECD and the Brain Slides coming soon	Memorial Sloan-Kettering Cancer Center E-mail: diamone1@mskcc.org \| Telephone: 1.212.639.5122
Mary Elizabeth Davis, RN, MSN, AOCNS and Allison Hyde, RN, BSN	Demystifying the Clinical Trial See also printable ECD Studies & Trials Guide	Memorial Sloan Kettering Cancer Center Davis E-mail: davism@mskcc.org \| Telephone: 1. 646.942.0189Hyde Telephone: 1.916.505.1517
Ronald Go, MD	ECD Treatment Options	Mayo Clinic E-mail: go.ronald@mayo.edu \| Telephone: 1.507.284.5362
Mark Heaney, MD	An Overview of ECD	Columbia University Medical Center E-mail: Mlh2192@cumc.columbia.edu \| Telephone: 1.646.317.5077
Filip Janku, MD, PhD	ECD and Clinical Trials See also printable ECD Studies & Trials Guide	The University of Texas MD Anderson Cancer Center E-mail: fjanku@mdanderson.org \| Telephone: 1.713.563.0803
Meenal Kheterpal, MD	Skin Care Pearls ECD Management	Memorial Sloan Kettering Cancer Center Telephone: 1.914.367.7295
Andy J. Roth, MD	Psychological Effects on the Chronically Ill and Their Families	Memorial Sloan Kettering Cancer Center Telephone: 1.646.888.0024