Press Releases
The Boy with Erdheim-Chester Disease
An inspiring story of a 15-year-old diagnosed with ultra-rare blood cancer found predominately in adults.
The Fresh Faces Project Stands With ECD Survivors: These Are Their Stories
ECD survivor Dawn Smith shares her journey living with this disease.
Caitlyn Captures Hope
“I, Caityln Walch, think ECD is very important. My grandpa was diagnosed with ECD about 2 years ago. That didn’t stop him though. Ever since I was born my grandpa took care of me so I will take care of him. And that’s why ECD is so important to me. Don’t give up because of ECD, it should only make you try harder.”
The ECD Global Alliance Welcomes Chinese ECD Referral Care Center
Peking Union Medical College Hospital joins an elite group of hospitals skilled in treating Erdheim-Chester ...
The ECDGA Welcomes Vanderbilt University Medical Center to the ECD Referral Care Center Network
Nashville, TN is the newest location Erdheim-Chester Disease patients can go for treatment by ECD-knowledgeable doctors.
The Erdheim-Chester Disease Global Alliance Raises Awareness of ECD at USCAP 2017
Pathologists eagerly engage with ECDGA exhibitors to raise their awareness of ECD.
NIH Researchers Educate Doctors About ECD in New Orleans
Erdheim-Chester Disease and the NIH Undiagnosed Disease Program were the topics of discussion at the joint LSU and ...
Residents at LSUHSC Shreveport Learn About ECD
“Erdheim-Chester disease: Characteristics & Management” is presented by Filip Janku, MD, PhD
ECD Care Center Network Expansion Possible Because of Donors
Funding from ECD patients and their families and friends opens access to treatment facilities regardless of ...
Rare Disease Care Network Grows to Help More Patients
The Erdheim-Chester Disease Global Alliance adds four new ECD Care Centers in Canada and Europe.
Zelboraf Being Considered for FDA Approval
FDA Grants Priority Review and Breakthrough Therapy Designation for Zelboraf (vemurafenib) in Erdheim-Chester ...
The ECD Global Alliance Welcomes Israel ECD Referral Care Center
Assuta Medical Center joins an elite group of hospitals skilled in treating Erdheim-Chester disease patients.
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