Press Releases
FDA Granted Breakthrough Designation
The US Food and Drug Administration has granted a Breakthrough Therapy Designation to cobimetinib in the treatment ...
Drug Trial for Erdheim-Chester Disease Patients Now Recruiting
MD Anderson Cancer Center in Houston, Texas takes lead on Dabrafenib and Trametinib drug trial.
New York Pathologist Awarded 2017 Grant by ECD Global Alliance
The ECD Global Alliance awards an Erdheim-Chester disease research grant to MSKCC to define the disease-initiating ...
ECDGA Welcomes New ECD Care Center in North Carolina
The ECD Global Alliance welcomes Duke Cancer Institute in Durham, NC into the referral care center network that ...
ECD Patient Registry is Recruiting
The ECD Global Alliance announces the launch of the Registry for Patients with Erdheim-Chester Disease led by ...
June 2018 Houston Methodist Medical Education Grand Round|
Medical residents and physicians at Houston Methodist Hospital in Houston, TX learned about Erdheim-Chester ...
New California ECD Care Center at Stanford
The Erdheim-Chester Disease Global Alliance welcomes the Stanford Histiocytosis Program at Stanford Health Care as ...
July 2018 University of Miami Medical Education Grand Round
The University of Miami hosted a medical presentation to further residents’ education in histiocytic disorders. ...
The Erdheim-Chester Disease Global Alliance Raises Awareness of ECD at Hematology Conference
Hematologists from around the world eagerly engage with ECDGA exhibitors to learn more about this rare disease.
Drug Trial Blog Reveals What It’s Like to be a Participant
ECD Global Alliance community member writes on his involvement in the Dabrafenib and Trametinib therapeutic trial ...
ECD Global Alliance Volunteers Recognized During National Volunteer Week
From April 23 – 30, volunteers from around the world were acknowledged for their contributions to the ECD community.
Erdheim-Chester Disease Experience from a Chinese Patient: 2012 to 2017
A Chinese ECD patient and ECDGA volunteer tell about his journey with this rare illness.
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