Press Releases
Vickie McGuire
Support of my family who will do anything to have a positive outcome. Finding something to look forward to, i.e., ...
Rebecca Winthrop
My family is extremely supportive. I have good neighbours where I live and I am hopeful that we can stay on the ...
Barry Atnip
Hope springs from the dedication of doctors tackling my condition and the collaborative spirit among my medical ...
Edith Watters
The kindness of others has made a huge difference in my life. From the doctors who continue with research, give up ...
Bonnie Schulz
When I was diagnosed, I was told that as advanced as I was I had approximately 48 months to live. I feel very ...
Ana Valdez
I remain hopeful in God who gives me strength. I’m thankful for the amazing people I’ve met on this journey, and ...
Erdheim-Chester Disease Global Alliance Awards $50k Grant to Study ECD
A new study will help better understand disease-causing cells within ECD.
2021 ECD Research Grant Award Announcement
The Erdheim-Chester Disease Global Alliance awards Young Investigator Research Grant to an Italy doctor to explore ...
Uplifting Athletes Awards ECD Global Alliance Investigator Draft
A rare disease advocacy group was awarded an Erdheim-Chester Disease Research Grant to conduct a survivor study.
New ECD Care Center Welcomed in Gainesville Florida
The University of Florida Health joins the Erdheim-Chester Disease Global Alliance Referral Care Center network in ...
Second ECD Center for Floridians
The ultra-rare cancer group welcomes the second center of care knowledgeable in treating ECD in the Florida region ...
First ECD Care Center Opens in Spain
Hospital Universitari de Bellvitge Becomes First ECD Global Alliance Referral Care Center in Spain!
No results found.