This is a final and important reminder that February 1, 2026 is the deadline for ALL submissions: registrations at the early bird rate, award nominations, patient posters, and financial assistance requests related to the 2026 ECD Global Alliance Patient & Family Gathering.
Please review the items below carefully and take action before February 1.
FEBRUARY 1 DEADLINES — ACTION REQUIRED
- Event Registration (Early Bird Deadline)
Early bird registration ends February 1, 2026 for:
- Patient & Family Gathering – Register HERE
- 2026 ECDGA Award Nominations
Nominations for the Prix Mark Heaney pour la sensibilisation and the Prix du champion de la communauté must be submitted by February 1, 2026.
Submit Nominations HERE
- Financial Assistance Requests
February 1, 2026 is also the deadline to request financial assistance for attendance at the 2026 ECDGA Patient & Family Gathering. Requests submitted after this date cannot be considered.
Request Assistance HERE
- Patient Poster Submissions
February 1 2026 is the deadline to submit a Patient Poster for the 2026 ECDGA Patient and Family Gathering
Submit your poster HERE
EVENT DATES & LOCATION
Birmingham, Alabama
- Meet & Greet: April 29, 2026
- Patient & Family Gathering: April 30, 2026
Hosted by the Alliance mondiale ECD and the Faculté de médecine de l'UAB
IMPORTANT
If you are planning to:
- Register at the early bird rate
- Nominate someone for an award
- Request financial assistance
- Submit a Patient Poster
You must complete these steps by February 1, 2026.
For questions or assistance, please contact us at [email protected].
Thank you for your continued engagement, commitment, and support of the ECD community. We look forward to welcoming you to Birmingham this spring.

