Dear ECD Community, We are excited to announce that the 12th Annual Erdheim-Chester Disease Patient & Family Gathering will be held in Glasgow, Scotland, on August 27 and 28, 2027. Please mark your calendars and begin making plans to join patients, caregivers,...
Living with Erdheim-Chester Disease (ECD) often means paying close attention to your health. Between appointments, treatments, and the many demands of daily life, it can be easy to overlook one of the simplest wellness habits: staying hydrated. While hydration is...
Our hearts are full. Because of your incredible generosity, enthusiasm, and support, the ECDGA Virtual Fun Run, Walk, or Roll raised an amazing $23,626.00! Whether you donated, participated, shared our mission, or cheered others on, you made a difference. Together,...
We are incredibly grateful to everyone who made this year’s ECDGA Virtual Fun Run, Walk, or Roll such a remarkable success. Because of the generosity and dedication of our amazing community, we are thrilled to share that together we raised $23,626.00! This...
As our ECDGA Virtual Fun Run, Walk, or Roll comes to a close, we invite you to be part of something bigger than a fundraiser. You can be part of a community united by hope, compassion, and a shared commitment to those affected by Erdheim-Chester Disease. Your support...
