Dear ECD Community,
We are excited to announce that the 12th Annual Erdheim-Chester Disease Patient & Family Gathering will be held in Glasgow, Scotland, on August 27 and 28, 2027.
Please mark your calendars and begin making plans to join patients, caregivers, family members, and medical professionals for two meaningful days of learning, connection, and support.
Event Schedule
- August 27: ECD Meet & Greet
- August 28: ECD Patient & Family Gathering
Whether you are newly diagnosed, have been living with ECD for years, are caring for a loved one, or supporting someone affected by ECD, this gathering offers a unique opportunity to:
- Connect with others who understand the ECD journey.
- Learn from shared experiences and experts in the field.
- Build lasting friendships within our global community.
- Find hope, encouragement, and support.
We are also excited that the gathering will take place in the beautiful city of Glasgow, Scotland, allowing attendees to experience its rich history, warm hospitality, and vibrant culture while spending time with the ECD community.
Additional details, including registration, hotel information, and the full agenda, will be shared in the coming months.
We hope you’ll save the date and plan to join us for what promises to be another unforgettable gathering.
We look forward to seeing you in Glasgow!
Warmly,
The ECD Global Alliance Team

