We are incredibly grateful to everyone who made this year’s ECDGA Virtual Fun Run, Walk, or Roll such a remarkable success.

Because of the generosity and dedication of our amazing community, we are thrilled to share that together we raised $23,626.00!

This achievement is far more than a fundraising milestone—it is a reflection of the compassion, commitment, and hope that unite the Erdheim-Chester Disease community around the world.

Every person who participated, donated, shared our campaign, or encouraged others to get involved played an important role in making this event successful. Your support will help us continue to:

  • Fund critical Erdheim-Chester Disease research
  • Increase awareness of this rare disease
  • Provide education and trusted resources
  • Support patients and families across the globe

Because of you, we are able to continue advancing our mission and bringing hope to those affected by ECD.

Thank you for believing in our work and for standing beside the ECD community. Your generosity reminds us that when we come together, extraordinary things are possible.

From the bottom of our hearts thank you for going above and beyond. Together, we are stronger, and together, we are ensuring that no one faces ECD alone. 💙