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Upcoming Webinars & Recordings

Please read our Virtual Participation Policy before joining an ECD Global Alliance webinar. To receive emails about these events, please sign-up here.

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Expert-led webinars are scheduled as often as possible for all audiences. Stay tuned for more webinars this year!

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Topic: Survivorship in Erdheim-Chester Disease: Incorporating the patient voice

Date: September 23, 2025
Time: 1:00 PM CT

Speaker: Gaurav Goyal, M.D.
University of Alabama at Birmingham

Dr. Goyal was born and raised in India and completed his Hematology-Oncology Fellowship at the Mayo Clinic in Rochester, Minnesota. During his time at the Mayo Clinic, he developed a specialized focus on histiocytic disorders, including Erdheim-Chester Disease, Langerhans cell histiocytosis, and Rosai-Dorfman Disease. He conducted multiple studies on histiocytosis and played a key role in establishing the first multidisciplinary Histiocytosis Working Group, aimed at improving care for individuals affected by these rare disorders.

Dr. Goyal subsequently joined the Hematology-Oncology Division at the University of Alabama at Birmingham (UAB), where he founded an Erdheim-Chester Disease care center. At UAB, he also launched the Histiocytic Disorder Survivor Study in partnership with the Erdheim-Chester Disease Global Alliance (ECDGA), further advancing research and support for patients with histiocytic disorders.

 

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Recordings

The following videos are also posted to our YouTube Channel.

Managing Diabetes Insipidus (DI)

Managing Diabetes Insipidus (DI)

Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living with Arginine Vasopressin Deficiency, formerly known as Diabetes Insipidus.
ECD, A Global Vision

ECD, A Global Vision

Xavier Solanich, MD, PhD is an internal medicine physician at Bellvitge University Hospital (BUH), where he specializes in the treatment of patients with immunological disorders and rare diseases, including histiocytosis.
Rosai Dorfman Disease

Rosai Dorfman Disease

Discover insights from a leading expert on Rosai-Dorfman Disease. Gain a deeper understanding of this rare condition, its symptoms, diagnosis, and the latest treatment options. Don't miss out on expert knowledge that could make a difference!
Coping Strategies for Depression & Anxiety

Coping Strategies for Depression & Anxiety

Listen to Kevin O'Brien, NP, and Josef Lacy discussing mental health challenges and effective techniques for overcoming them. Gain insights firsthand from an ECD patient who shares his inspiring journey triumphing over mental health issues.
Beyond the Office Visit: Moving Through Rare Disease

Beyond the Office Visit: Moving Through Rare Disease

Tim Facciola, Certified Personal Trainer & Movement Specialist, joins us in a conversation about incorporating movement and exercise into life when managing a chronic illness or a rare disease, such as Erdheim-Chester Disease.
2021 ECD Virtual Medical Symposium

2021 ECD Virtual Medical Symposium

The 8th Annual International ECD Medical Symposium was held on November 16, 2021. This virtual experience was organized in hopes that the medical community is provided the opportunity to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease and other histiocytic disorders.
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For more ECDGA videos, please see the complete ECDGA YouTube Channel list at – Click Here