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Upcoming Webinars & Recordings

Please read our Virtual Participation Policy before joining an ECD Global Alliance webinar. To receive emails about these events, please sign-up here.

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Expert-led webinars are scheduled as often as possible for all audiences. Stay tuned for more webinars this year!

Upcoming:

Topic: Diagnosis and Treatment of Histiocytic Disorders

Topic: Diagnosis and Treatment of Histiocytic Disorders

Speaker: XinXin Cao, MD

Cancer Hospital, Chinese Academy of Medical Sciences, Chief Physician, PhD Supervisor, Deputy Director of Internal Medicine (Langfang Campus) Has long been engaged in clinical and basic research on histiocytic disorders.

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Topic: Erdheim-Chester Disease (ECD): Decoding diagnosis and treatments

Topic: Erdheim-Chester Disease (ECD): Decoding diagnosis and treatments

Speaker: Jerome Razanamahery, MD
Dijon University Hospital

Date: December 1, 2025
Time: 5:00 PM CET (UTC +1) (Paris Time)

Dr. Razanamahery is an expert in internal medicine with a recognized specialization in the field of rare histiocytoses, including Erdheim-Chester Disease (ECD). He is a clinician-researcher at the University Hospital Center of Dijon, where he heads the unit dedicated to histiocytic disorders.

With many years of experience and under the mentorship of Pr Haroche, Dr. Razanamahery actively participates in clinical research and is a member of national and international reference networks on histiocytoses. His commitment is to provide cutting-edge care while ensuring that every patient and their family receive clear information and personalized support to navigate the complexity of this disease as effectively as possible.
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Recordings

The following videos are also posted to our YouTube Channel.

For more ECDGA videos, please see the complete ECDGA YouTube Channel list at – Click Here

Survivorship in Erdheim-Chester Disease: Incorporating the Patient Voice

Survivorship in Erdheim-Chester Disease: Incorporating the Patient Voice

Presented by Dr. Gaurav Goyal, University of Alabama at Birmingham In partnership with the Erdheim-Chester Disease Global Alliance (ECDGA) This presentation explores the importance of survivorship research in Erdheim-Chester Disease (ECD) and the critical role patients play in shaping that research.
Managing Diabetes Insipidus (DI)

Managing Diabetes Insipidus (DI)

Managing Diabetes Insipidus (DI), now called Arginine Vasopressin Deficiency (AVP-D), is critical for patients, families, and clinicians — especially those with Erdheim-Chester Disease (ECD) or Langerhans Cell Histiocytosis (LCH), where AVP-D is more common.
ECD, A Global Vision

ECD, A Global Vision

Xavier Solanich, MD, PhD is an internal medicine physician at Bellvitge University Hospital (BUH), where he specializes in the treatment of patients with immunological disorders and rare diseases, including histiocytosis.
2021 ECD Virtual Medical Symposium

2021 ECD Virtual Medical Symposium

The 8th Annual International ECD Medical Symposium was held on November 16, 2021. This virtual experience was organized in hopes that the medical community is provided the opportunity to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease and other histiocytic disorders.
Beyond the Office Visit: Moving Through Rare Disease

Beyond the Office Visit: Moving Through Rare Disease

Tim Facciola, Certified Personal Trainer & Movement Specialist, joins us in a conversation about incorporating movement and exercise into life when managing a chronic illness or a rare disease, such as Erdheim-Chester Disease.
Coping Strategies for Depression & Anxiety

Coping Strategies for Depression & Anxiety

Listen to Kevin O'Brien, NP, and Josef Lacy discussing mental health challenges and effective techniques for overcoming them. Gain insights firsthand from an ECD patient who shares his inspiring journey triumphing over mental health issues.
Rosai Dorfman Disease

Rosai Dorfman Disease

Discover insights from a leading expert on Rosai-Dorfman Disease. Gain a deeper understanding of this rare condition, its symptoms, diagnosis, and the latest treatment options. Don't miss out on expert knowledge that could make a difference!
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