For many people with ECD, the road to a diagnosis is measured in years, not weeks. The sooner ECD is recognized, the sooner patients can begin their journey toward answers, expert care, and hope. Awareness isn’t just about education. It can help shorten the path...
Ziggy Knows… There isn’t one symptom that defines ECD. Some people experience bone pain, fatigue, excessive thirst, balance problems, skin changes, shortness of breath, or other symptoms. Every patient’s journey is different. Knowing the signs can...
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