Medlemssteder
ECD Patient Locations
The following lists represent the number of patients currently registered with the ECD Global Alliance; to date, there have been a total of 900 patients registered with the organization. We believe there are other patients in the world that are either not yet diagnosed or may not be aware of the ECDGA and therefore have not registered. We encourage all diagnosed ECD patients to register with the organization here at no cost. For those searching for a diagnosis, please contact us. We are happy to help you connect with physicians who can aid in a correct diagnosis.
| Registrert sted | # Pasienter |
| Algerie | 1 |
| Antarktis | 1 |
| Argentina | 6 |
| Aruba | 1 |
| Australia | 38 |
| Østerrike | 1 |
| Aserbajdsjan | 1 |
| Bahrain | 1 |
| Belgia | 7 |
| Brasil | 40 |
| Bulgaria | 3 |
| Canada | 37 |
| Chile | 6 |
| Kina | 15 |
| Colombia | 4 |
| Cuba | 1 |
| Kypros | 1 |
| Danmark | 2 |
| Egypt | 2 |
| Frankrike | 42 |
| Georgia | 1 |
| Tyskland | 26 |
| Hellas | 3 |
| Ungarn | 2 |
| India | 7 |
| Iran (Den islamske republikken) | 3 |
| Irak | 1 |
| Irland | 2 |
| Israel | 15 |
| Italia | 28 |
| Japan | 2 |
| Kasakhstan | 2 |
| Korea, Republikken Korea | 1 |
| Kirgisistan | 1 |
| Libanon | 1 |
| Libya | 1 |
| Mexico | 8 |
| Moldova, Republikken | 1 |
| Marokko | 1 |
| Namibia | 1 |
| Nepal | 3 |
| Nederland | 11 |
| New Zealand | 7 |
| Nord-Makedonia | 1 |
| Norge | 6 |
| Pakistan | 3 |
| Panama | 1 |
| Paraguay | 1 |
| Peru | 2 |
| Filippinene | 2 |
| Polen | 2 |
| Portugal | 4 |
| Romania | 4 |
| Den russiske føderasjonen | 3 |
| Saudi-Arabia | 3 |
| Singapore | 1 |
| Slovenia | 1 |
| Sør-Afrika | 2 |
| Spania | 22 |
| Sverige | 3 |
| Sveits | 5 |
| Thailand | 1 |
| Trinidad og Tobago | 1 |
| Tunisia | 1 |
| Tyrkia | 10 |
| Turkmenistan | 1 |
| Ukraina | 2 |
| De forente arabiske emirater | 2 |
| Det forente kongerike Storbritannia og Nord-Irland | 51 |
| Amerikas forente stater | 425 |
| Uruguay | 2 |
| Totalt | 900 |
| Mann | 61% |
| Kvinner | 39% |
| Registrert i USA Stat/Territorium Sted | # Pasienter |
| Alabama | 4 |
| Alaska | 1 |
| Arizona | 9 |
| California | 60 |
| Colorado | 13 |
| Connecticut | 5 |
| Delaware | 2 |
| District of Columbia | 3 |
| Florida | 27 |
| Georgia | 12 |
| Hawaii | 3 |
| Idaho | 2 |
| Illinois | 16 |
| Indiana | 10 |
| Iowa | 9 |
| Kansas | 2 |
| Kentucky | 8 |
| Louisiana | 2 |
| Maine | 5 |
| Maryland | 9 |
| Massachusetts | 7 |
| Michigan | 18 |
| Minnesota | 9 |
| Mississippi | 3 |
| Missouri | 13 |
| Nebraska | 3 |
| Nevada | 2 |
| New Hampshire | 2 |
| New Jersey | 10 |
| New Mexico | 1 |
| New York | 23 |
| Nord-Carolina | 6 |
| Nord-Dakota | 1 |
| Ohio | 16 |
| Oklahoma | 2 |
| Oregon | 4 |
| Pennsylvania | 22 |
| Sør-Carolina | 4 |
| Sør-Dakota | 3 |
| Tennessee | 7 |
| Texas | 15 |
| Vermont | 2 |
| Virginia | 13 |
| Washington | 17 |
| Vest-Virginia | 1 |
| Wisconsin | 7 |
| Wyoming | 1 |
| Puerto Rico | 3 |
| Ukjent stat | 8 |
| Totalt | 425 |