by Asmaa Javed | Dec 31, 2012 | Voices of ECD
The daughter of an ECD patient has written and performed a song about her dad.
by Asmaa Javed | Dec 31, 2011 | Voices of ECD
A news story from the Yorkshire Post about a doctor who has been diagnosed with Erdheim-Chester Disease. He discusses his experiences in living with ECD.
by Asmaa Javed | Dec 31, 2011 | Voices of ECD
A news story about a young woman with Erdheim-Chester Disease (see story below) who met her future husband at a scuba dive event.
by Asmaa Javed | Dec 31, 2011 | Voices of ECD
A local news story about a couple in Missouri who are learning to cope with Erdheim-Chester Disease.
by Asmaa Javed | Dec 31, 2011 | Voices of ECD
An article about a man, with Erdheim-Chester Disease, who with his wife has started a nonprofit organization called, ‘Angel Hearts’. The organization is dedicated to helping families who are in need because of medical conditions, including illness and...
by Asmaa Javed | Dec 31, 2011 | Voices of ECD
An inspirational first-person account from someone who is living with ECD. *A version of the “A Man Blessed” story from above that does not require a subscription to the newspaper.
