A teenager suffering from Erdheim-Chester Disease gets to spend a day with military pilots and aircraft and pilot an aircraft simulator in his own personalized flight suit.
“Despite the change that sickness has brought into Janet’s life, she welcomes each new day with open arms, and keeps the things that truly matter to her close by. This passage was written based on her everlasting optimism, and her radiant smile.”
A fundraiser was held in honor of former Irondequoit and St. John Fisher College basketball standout, Gurnal Jones, who is battling a rare disease called Erdheim-Chester.
