Relay for Life in Nashville

Relay for Life in Nashville

by | Dec 31, 2024 | Voices of ECD

One of the biggest American Cancer Society events of the year hosted an Erdheim-Chester Disease team! By Chesnee Green, September 21, 2018, Nashville TN. – Erdheim-Chester Disease Global Alliance (ECDGA), a non-profit based in DeRidder LA, continually searches for a...
Football, Family, and Rare Disease

Football, Family, and Rare Disease

by | Dec 31, 2024 | Voices of ECD

A passion for football, and brothers love, showed one rare disease that family is first. Written by Chesnee Green September 1, Columbia, MO – Fall is upon us!  For many this means pumpkin spice and sweaters, for others it’s the pigskin and gridiron: Football!  For the...

Rare Disease Baffled Medics 

by | Dec 31, 2024 | Voices of ECD

Written by an ECD family with the intention to raise awareness. “Special thanks to Dr. Roei Mazor for his invaluable contributions to this article for its medical accuracy, and for his unwavering care and treatment of my dad over the past four+ years.” – Michael...