by Asmaa Javed | Dec 31, 2017 | Old News
ECD Global Alliance community member writes on his involvement in the Dabrafenib and Trametinib therapeutic trial at the National Institutes of Health.
by Asmaa Javed | Dec 31, 2017 | Old News
From April 23 – 30, volunteers from around the world were acknowledged for their contributions to the ECD community.
by Asmaa Javed | Dec 31, 2017 | Old News
A Chinese ECD patient and ECDGA volunteer tell about his journey with this rare illness.
by Asmaa Javed | Dec 31, 2017 | Old News
An inspiring story of a 15-year-old diagnosed with ultra-rare blood cancer found predominately in adults.
by Asmaa Javed | Dec 31, 2017 | Old News
An ECD patient, along with friends and family, set out to raise awareness of ECD and funding for the ECDGA with a local restaurant fundraiser! This radio interview helped spread the word.
by Asmaa Javed | Dec 31, 2017 | Old News
ECD survivor Dawn Smith shares her journey living with this disease.
