Ziggy Knows… ECD is considered ultra-rare. Researchers found that about 1 to 2 out of every 10 million people were newly diagnosed with ECD in the US during 2021 and 2022. Many healthcare professionals may never encounter a patient with ECD during their careers,...
Ziggy Knows… Erdheim-Chester Disease (ECD) is an ultra-rare blood cancer that can affect many different parts of the body, including the bones, heart, brain, kidneys, lungs, skin, eyes, and other organs. Because it can look different from person to person, ECD...
Hi! I’m Ziggy, your ECD Awareness Guide. Throughout September, I’ll be sharing facts, answering common questions, introducing inspiring members of our community, and helping make Erdheim-Chester Disease easier to understand. Let’s learn...
ECDGA Community, This week marks the beginning of ECD Awareness Month, and we’re starting with one of the most important steps we can take together: helping more people understand Erdheim-Chester Disease. You can’t recognize what you’ve never heard of. For many people...
As ECD Awareness Month comes to a close, we want to thank everyone who helped us share information, recognize symptoms, celebrate research, support families, and make Erdheim-Chester disease more visible. Every post shared, story told, and conversation started helps...
