In this special ECD webinar, Dr. Jerome Razanamahery, an internal medicine doctor at Dijon University Hospital, an ECD referral care center, talks about Erdheim-Chester Disease (ECD). He explains what ECD is, why it can be hard to diagnose, and how new targeted treatments are helping improve patient outcomes.
This webinar is presented in French.
This video includes a message from Prof. Julien Haroche, a lead physician at the ECD referral care center at Hôpital Pitié-Salpêtrière in Paris, France. He is the head of the French Reference Center for Histiocytosis.
The video also features a powerful patient story from Mr. Jacques Dutu, who bravely shares his journey with ECD, from feelings of anger and confusion to hope and empowerment.
You’ll learn:
- What makes ECD a rare and complex inflammatory blood cancer
- Why ECD is hard to diagnose early, and which symptoms to look out for
- How mutations like BRAFV600E affect treatment choices
- How targeted treatments, such as BRAF and MEK inhibitors, help patients
- Why mental health support and quality of life are important
- Why the ECD Global Alliance exists and how it helps patients and families worldwide
This video is part of our ongoing mission to raise awareness, offer support, and help advance research for people affected by Erdheim-Chester Disease.