The ECD Global Alliance is excited to announce that registration is now open for the 2026 Patient & Family Gathering and 医学研讨会, to be held in 阿拉巴马州伯明翰市.
This important annual event brings together patients, caregivers, family members, clinicians, and researchers for a time of learning, support, and connection.
活动详情
- 见面会： 2026年4月29日
- 患者及家属聚会： 2026年4月30日
- 地点： 阿拉巴马州伯明翰市
- 主办方： 该 ECD全球联盟 and the 阿拉巴马大学伯明翰分校医学院
预期情况
Participants will have the opportunity to:
- Hear from leading experts about the latest in ECD research and treatment
- Join breakout discussions for patients and caregivers
- Connect with others in the ECD community
- Learn practical tools, 资源, and information to support daily life with ECD
Registration Is Open
Secure your spot today to take part in this meaningful gathering.
早鸟注册截止日期为2026年2月1日.
More Information
For more event details, please visit erdheim-chester.org or 联系我们 at [email protected]. We are happy to assist with any questions.
We look forward to welcoming you to Birmingham!