A Message to Our Community

A Message to Our Community

When someone hears the words “You have Erdheim-Chester Disease,” they often have more questions than answers. Where do I find information? Who can help me understand this disease? What treatment options exist? How can I find others experiencing this...
The Fun Run Starts TODAY — Welcome to Fast Start Match Week!

The Fun Run Starts TODAY — Welcome to Fast Start Match Week!

The wait is over the ECDGA Fun Run officially begins today! To celebrate launch week, we are excited to announce our special kickoff challenge: FAST START MATCH WEEK During the first week of the Fun Run, the Top 3 Teams and the Top 3 Individual Fundraisers will each...