When someone hears the words “You have Erdheim-Chester Disease,” they often have more questions than answers.

  1. Where do I find information?
  2. Who can help me understand this disease?
  3. What treatment options exist?
  4. How can I find others experiencing this disease?

ECDGA helps answer those questions every day.

Support patients and families by making a matched gift today.

We are so close to reaching our Match Challenge of $10,000.00.  We have $7261.00.  Help us get this match before June 30.

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