When someone hears the words “You have Erdheim-Chester Disease,” they often have more questions than answers.
- Where do I find information?
- Who can help me understand this disease?
- What treatment options exist?
- How can I find others experiencing this disease?
ECDGA helps answer those questions every day.
Support patients and families by making a matched gift today.
We are so close to reaching our Match Challenge of $10,000.00. We have $7261.00. Help us get this match before June 30.

