The wait is over the ECDGA Fun Run officially begins today!
To celebrate launch week, we are excited to announce our special kickoff challenge:
FAST START MATCH WEEK
During the first week of the Fun Run, the Top 3 Teams and the Top 3 Individual Fundraisers will each receive an additional $100 added to their fundraising totals at the end of the week.
This is your opportunity to:
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- Build early momentum
- Climb the leaderboard
- Increase awareness for Erdheim-Chester Disease
- Support patients and caregivers around the world
Whether you walk, run, donate, fundraise, or simply share your page with friends and family, every action helps strengthen our global ECD community.
New to the ECDGA Fun Run? It’s easy! Walk, run, roll, skip, hike, or move however you like where you want and when you want. Participate solo or create a team. Teams can be 1 person or 1,000! Every mile and every dollar helps support the ECD community and advances research, education, and patient support worldwide.
How to Get Started
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- Register for the Fun Run
- Join or create a team
- Personalize your fundraising page
- Share your story on social media
- Invite others to support your efforts
The race to the top starts now and every dollar makes a difference.
Thank you for supporting the Erdheim-Chester Disease Global Alliance and the patients and families we serve worldwide.
Let’s make this an amazing first week!

