Registration is closing soon for the 2026 Erdheim-Chester Disease Global Alliance (ECDGA) Medical Symposium, taking place April 30–May 2, 2026, in Birmingham, Alabama. This annual event is a cornerstone gathering for the global medical and research community focused...
The Erdheim-Chester Disease Global Alliance (ECDGA) was honored to host Dr. Julio Santori-Valinotti of the Mayo Clinic during a special “Expert Hour” at the ECDGA booth at the American Academy of Dermatology (AAD) Annual Meeting in Denver. A highlight of the session...
The Erdheim-Chester Disease Global Alliance (ECDGA) invites physicians, researchers, and healthcare professionals to attend the ECDGA Medical Symposium, taking place April 30 – May 2, 2026, in Birmingham, Alabama. This symposium will bring together experts and...
Living with Erdheim-Chester Disease (ECD) often means managing fatigue, pain, inflammation, and the emotional weight of a rare condition. Quality sleep isn’t just a luxury—it’s a critical part of maintaining your overall health and improving daily functioning. During...
We’re excited to announce that the official 2026 Erdheim-Chester Disease Global Alliance (ECDGA) Patient & Family Gathering T-shirt is now available! This year’s design celebrates community, connection, and strength—featuring a vibrant Birmingham skyline and...
