Welcome to Week 2 of the ECDGA 3rd Annual Fun Run, Walk or Roll! This week, we’re focusing on one of the most important parts of our event—building your team. Every new participant helps us raise awareness of Erdheim-Chester Disease and expands the reach of our...
https://www.erdheim-chester.org/wp-content/uploads/2026/05/ezgif-1b6e08c1f56ee3e9.mp4 Ziggy is proud to announce the ECDGA 2026 Award Honorees individuals whose leadership, dedication, and advocacy continue to inspire meaningful change throughout the...
Time is almost up to secure your spot for one of the most meaningful events in the Erdheim-Chester Disease (ECD) community. The 2026 Patient & Family Gathering will take place in Birmingham, Alabama on April 29–30, 2026—and registration is closing soon. This...
Registration is closing soon for the 2026 Erdheim-Chester Disease Global Alliance (ECDGA) Medical Symposium, taking place April 30–May 2, 2026, in Birmingham, Alabama. This annual event is a cornerstone gathering for the global medical and research community focused...
The Erdheim-Chester Disease Global Alliance (ECDGA) was honored to host Dr. Julio Santori-Valinotti of the Mayo Clinic during a special “Expert Hour” at the ECDGA booth at the American Academy of Dermatology (AAD) Annual Meeting in Denver. A highlight of the session...
