The Erdheim-Chester Disease Global Alliance (ECDGA) invites physicians, researchers, and healthcare professionals to attend the ECDGA Medical Symposium, taking place April 30 – May 2, 2026, in Birmingham, Alabama. This symposium will bring together experts and...
Living with Erdheim-Chester Disease (ECD) often means managing fatigue, pain, inflammation, and the emotional weight of a rare condition. Quality sleep isn’t just a luxury—it’s a critical part of maintaining your overall health and improving daily functioning. During...
We’re excited to announce that the official 2026 Erdheim-Chester Disease Global Alliance (ECDGA) Patient & Family Gathering T-shirt is now available! This year’s design celebrates community, connection, and strength—featuring a vibrant Birmingham skyline and...
The Erdheim-Chester Disease Global Alliance (ECDGA) invites physicians, researchers, and healthcare professionals to attend the ECDGA Medical Symposium, taking place April 30 – May 2, 2026, in Birmingham, Alabama. This symposium will bring together experts and...
https://www.erdheim-chester.org/wp-content/uploads/2026/02/Today-Is-Rare-Disease-Day-Stand-With-Us.mp4 Your support helps create awareness, compassion, and hope. Here’s how you can help today: Share your story Make a gift to support our mission Learn more and advocate...
