We are pleased to announce that registration is now open for the 2026 ECD Global Alliance Medical Symposium in Birmingham, Alabama. This important annual event brings together clinicians, researchers, and medical professionals dedicated to advancing the understanding...
Together, We Move Forward From the Erdheim-Chester Disease Global Alliance As we step into 2025, the Erdheim-Chester Disease Global Alliance (ECDGA) reflects on another meaningful year of connection, progress, and unwavering commitment to our mission. From our...
Created using the Donation Thermometer plugin https://wordpress.org/plugins/donation-thermometer/.$30,000.00$30,000.00Raised $30,000.00 towards the $30,000.00 target.100.00% A generous donor has stepped forward with an additional matching opportunity of up to $30,000....
Dear ECDGA Community, As we approach the close of the year, we want to take a moment to thank you for being such an important part of the ECDGA community. Your generosity, encouragement, and belief in our mission make a meaningful difference every single day. There is...
The holiday season is often filled with celebration, connection, and meaningful traditions. But for individuals living with Erdheim-Chester disease (ECD), this time of year can also bring unique challenges—fatigue, stress, disrupted routines, medical appointments,...
