Ziggy is proud to announce the ECDGA 2026 Award Honorees individuals whose leadership, dedication, and advocacy continue to inspire meaningful change throughout the Erdheim-Chester disease community and beyond. These honorees represent the very best of compassion, innovation, and commitment to improving the lives of patients and families affected by rare diseases.
Join us in celebrating their incredible contributions and the impact they continue to make every day. Watch Ziggy’s special announcement video and help us recognize these outstanding leaders as we look ahead to an exciting year for the ECDGA community.

