Time is almost up to secure your spot for one of the most meaningful events in the Erdheim-Chester Disease (ECD) community. The 2026 Patient & Family Gathering will take place in Birmingham, Alabama on April 29–30, 2026—and registration is closing soon.
This special event, hosted by the Erdheim-Chester Disease Global Alliance (ECDGA), is designed to bring together patients, caregivers, and families from around the world in a supportive and educational environment.
Why Attend?
The Patient & Family Gathering is a unique opportunity to:
- Connect with others who understand the ECD journey
- Hear directly from medical professionals experienced in ECD care and research
- Learn about the latest scientific advancements and ongoing research
- Ask questions and gain insights in an open, welcoming setting
- Build lasting relationships within a global support network
Each year, this gathering serves as a powerful reminder that no one in the ECD community is alone. What began as a small group of caregivers seeking connection has grown into a worldwide network supporting over 1,000 families across 76 countries.
Don’t Miss Out
Whether you are newly diagnosed, a long-time patient, or supporting a loved one, this event offers valuable knowledge, encouragement, and community connection.
Registration is closing soon—don’t miss your chance to be part of this important gathering.
Visit https://www.erdheim-chester.org/ to learn more and register today.