Webinarer
ECDGA YouTube-spillelisten, «Webinarer ECDGA», inkluderer 25 vídeos med medisinske fagpersoner som diskuterer behandlinger for Erdheim-Chester Disease (ECD) og relaterte kliniske emner.
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Neste material didático webinar, Kevin O'Brien, Nurse Practitioner at the National Institutes of Health (NIH), provides an in-depth overview of managing pain and fatigue in people living with Erdheim-Chester Disease (ECD).
Neste material didático webinar, Kevin O'Brien, Nurse Practitioner at the National Institutes of Health (NIH), provides an in-depth overview of managing depression and anxiety in people living with Erdheim-Chester Disease (ECD).
Neste material didático webinar, Dr. Mohamed G. Atta, MD, a kidney specialist at Johns Hopkins Hospital, an ECD referral care center, gives a detailed look at how Erdheim-Chester Disease (ECD) can ...
This patient education session features Dr. XinXin Cao, a hematologist at Peking Union Medical College Hospital, an ECD referral care center. She talks about common histiocytic disorders, ...
In this special ECD webinar, Dr. Jerome Razanamahery, an internal medicine doctor at Dijon University Hospital, an ECD referral care center, talks about Erdheim-Chester Disease (ECD). He ...
Presented by Dr. Sam Reynolds, Hematologist–Oncologist in partnership with the Erdheim-Chester Disease Global Alliance (ECDGA). This presentation explores the molecular and clinical complexity of Erdheim-Chester Disease (ECD)—a rare histiocytic disorder characterized by the overproduction of abnormal immune cells called histiocytes.
Presented by Dr. Gaurav Goyal, University of Alabama at Birmingham In partnership with the Erdheim-Chester Disease Global Alliance (ECDGA) This presentation explores the importance of survivorship research in Erdheim-Chester Disease (ECD) and the critical role patients play in shaping that research.
Managing Diabetes Insipidus (DI), now called Arginine Vasopressin Deficiency (AVP-D), is critical for patients, families, and clinicians — especially those with Erdheim-Chester Disease (ECD) or Langerhans Cell Histiocytosis (LCH), where AVP-D is more common.
Xavier Solanich, MD, PhD is an internal medicine physician at Bellvitge University Hospital (BUH), where he specializes in the treatment of patients with immunological disorders and rare diseases, including histiocytosis.
The Leukemia & Lymphoma Society offers a free service called the Clinical Trial Support Center (CTSC) to help blood cancer patients, caregivers, and healthcare professionals find potential clinical trials and overcome enrollment barriers. This webinar will discuss the process and support Erdheim-Chester patients.
Information Specialists offer free, one-on-one education, psychosocial support, and advocacy for blood cancer patients, caregivers, and families. They cover disease and treatment options, clinical trials, mental health support, and treatment team communication.
Overview of the various education recursos and support services provided to patients and their families and the healthcare providers that care for them.
The 8th Annual International ECD Simpósio Médico was held on November 16, 2021. This virtual experience was organized in hopes that the medical community is provided the opportunity to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease and other histiocytic disorders.
The ECD Global Alliance (ECDGA) and the Histiocytosis Association co-host Beyond the Office Visit virtual education series, Part Two: Functional Nutrition & Wellness.
Tim Facciola, Certified Personal Trainer & Movement Specialist, joins us in a conversation about incorporating movement and exercise into life when managing a chronic illness or a rare disease, such as Erdheim-Chester Disease.
Learn about the tratamentos used to treat Erdheim-Chester disease (ECD), what to expect over time and the side effects that may be involved.
Participar de um ensaio clínico pode trazer muitos benefícios para o paciente e para a comunidade. Esperamos que esta sessão ajude você a entender melhor os ensaios clínicos, a saber como conversar com seu médico sobre eles e que, ao final, você se sinta preparado com as informações corretas recursos.
Dr. Michael Girschikofsky from the Elisabethinen Hospital Linz explains ECD to German-speaking ECD patients and families.
Ouça Kevin O'Brien, enfermeiro especializado (NP), e Josef Lacy discutindo os desafios relacionados à saúde mental e técnicas eficazes para superá-los. Conheça em primeira mão o testemunho de um paciente do ECD que compartilha sua inspiradora jornada de superação dos problemas de saúde mental.
Ouça uma profissional experiente na área de desenvolvimento infantil (ECD) compartilhar suas reflexões e estratégias para cuidar de si mesma.
Discover insights from a leading expert on Rosai-Dorfman Disease. Gain a deeper understanding of this rare condition, its sintomas, diagnóstico, and the latest treatment options. Don't miss out on expert knowledge that could make a difference!
This is the start of the Beyond the Office Visit virtual education series co-hosted with the Histiocytosis Association.
An educational webinar was held to explain the newest Erdheim-Chester Disease (ECD) consensus document and learn how to use it for care and payer support.
In this review of the latest ECD Consensus Guidelines 2020, the presentation and discussion are tailored for the medical professional community.
Neste webinar, the doctors at Memorial Sloan Kettering Cancer Center (MSK) help further your understanding of how current eye involvement may affect daily life and how to obtain better outcomes and results.
This webinar, co-hosted by the Histiocytosis Association and Erdheim-Chester Disease Global Alliance focused on ECD and covers endocrine conditions and their management across all histiocytic disorders.
Uma revisão das Diretrizes® da National Comprehensive Cancer Network (NCCN) para histiocitose, publicadas recentemente.
Dr. Gaurav Goyal, University of Alabama Birmingham, led the educational meeting by presenting the topic of Impact on adult patients with LCH and Erdheim-Chester, ongoing tratamentos, and studies.
Dr. Gaurav Goyal, University of Alabama, Birmingham, led the educational meeting by presenting the topic of Impact on adult patients with LCH and Erdheim-Chester, ongoing tratamentos, and studies.
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