Junte-se a nós
Join the ECD Global Alliance!
Thank you for considering registering with our organization. The ECDGA members are a community of people that come together to fight this disease one day at a time.
Why join the ECD Global Alliance?
- Empowerment: “Alone we are rare. Together we are strong.” – National Organization of Rare Disorders (NORD)
- Meet Other People: Cut through the isolation and make new friends.
- Find the Latest Treatment Information: New tratamentos, tricks and information available from the organization and its members.
- Have Fun: Be around people who “get it” and find ways to incorporate what you love into helping find a cure.
- Gain New Skills: Voluntário opportunities are limitless.
- Get Access to Experts: Access to ECD experts is available through the organization.
- Help Others: “Be the change you want to see in the world.”
- Eliminate a Challenge in your Life: Find a way to make your life and other’s lives easier.
We believe that the voice of the Erdheim-Chester Disease community becomes stronger when we all join together. We invite you to join the community today.
Whether you or a loved one has been recently diagnosed with Erdheim-Chester Disease, you are a scientist/physician, or you are interested in the work of the ECD Global Alliance, you can join the organization to stay informed and be a part of a passionate group of people committed to making life better for those in the ECD community.
Why should you join our community?
- Stay informed of what is happening within the community based on your interests.
- Stay aware of the latest scientific findings, including new information regarding ECD tratamentos and management.
- Meet other people who share your interests and experiences.
- Get involved to make a positive difference in the lives of all affected by ECD.
- It’s quick, easy and free!
Patients and family members can take a positive step in learning how to best live with ECD by joining the ECDGA.
Caregivers and friends can show support and learn more Sobre a ECD by joining the ECDGA.
Physicians and scientists can become part of a collaborative group of highly skilled professionals who are dedicated to learning more Sobre a ECD and finding ways to best treat ECD.
Please don’t delay, join today!
Join the ECD Global Alliance!
Thank you for considering registering with our organization. The ECDGA members are a community of people that come together to fight this disease one day at a time.
Why join the ECD Global Alliance?
- Empowerment: “Alone we are rare. Together we are strong.” – National Organization of Rare Disorders (NORD)
- Meet Other People: Cut through the isolation and make new friends.
- Find the Latest Treatment Information: New tratamentos, tricks and information available from the organization and its members.
- Have Fun: Be around people who “get it” and find ways to incorporate what you love into helping find a cure.
- Gain New Skills: Voluntário opportunities are limitless.
- Get Access to Experts: Access to ECD experts is available through the organization.
- Help Others: “Be the change you want to see in the world.”
- Eliminate a Challenge in your Life: Find a way to make your life and other’s lives easier.
We believe that the voice of the Erdheim-Chester Disease community becomes stronger when we all join together. We invite you to join the community today.
Whether you or a loved one has been recently diagnosed with Erdheim-Chester Disease, you are a scientist/physician, or you are interested in the work of the ECD Global Alliance, you can join the organization to stay informed and be a part of a passionate group of people committed to making life better for those in the ECD community.
Why should you join our community?
- Stay informed of what is happening within the community based on your interests.
- Stay aware of the latest scientific findings, including new information regarding ECD tratamentos and management.
- Meet other people who share your interests and experiences.
- Get involved to make a positive difference in the lives of all affected by ECD.
- It’s quick, easy and free!
Patients and family members can take a positive step in learning how to best live with ECD by joining the ECDGA.
Caregivers and friends can show support and learn more Sobre a ECD by joining the ECDGA.
Physicians and scientists can become part of a collaborative group of highly skilled professionals who are dedicated to learning more Sobre a ECD and finding ways to best treat ECD.
Please don’t delay, join today!