Kyndige leger

Medical Professional Contacts

Medical Professionals with Erdheim-Chester Disease Knowledge/Experience

Often times a patient cannot travel to an ECD Care Center. In this case a patient may need physician close to home who is knowledgeable about ECD and the care of someone living with ECD.

The ECDGA Patient Navigator has access to information about physicians outside of Care Centers who are familar with ECD. If you are a patient or family member, and need information about physicians outside of Care Centers, please contact us.

If you are a medical professional and would like to include your name and contact information to the ECD Global Alliance to help patients find you, please contact us.

Hvis du er helsepersonell og er interessert i å få din institusjon lagt til i ECD Care Center Referral Network, kan du kontakte oss.

Hvert enkelt omsorgssenter må være dedikert til å sikre at ECD pasienter får behandling på ekspertnivå.

For å bli et omsorgssenter må man fylle ut et skjema for selvnominering. Det kreves blant annet informasjon som viser at teamet ditt er i stand til å gi egnet omsorg og støtte til personer som lever med ECD.