
Why You Should Attend:
- Exclusive Access to ECD Experts – Learn from top physicians, researchers, and specialists dedicated to improving ECD treatment options and patient care.
- Q&A Sessions with Medical Professionals – Get your most pressing questions answered by experts in Erdheim-Chester Disease care.
- Connect with the ECD Community – Engage with fellow ECD patients, caregivers, and families who truly understand the journey of living with this rare disease.
- Advancing Supportive Care – Your early registration helps us move towards providing preferred language interpretation services, making this event more accessible.
- Patient Advocacy & Research Updates – Stay informed about the latest advancements in ECD behandelingen, research, and advocacy efforts.
Register Today & Save!
Take advantage of early bird pricing and secure your spot at this impactful event. Don’t miss out on this chance to gain knowledge, support, and bronnen that can make a difference in your ECD journey.
Register now: ECD Patient & Family Gathering Registration
Join us in strengthening the ECD community and working towards better care, awareness, and support for all those affected by De ziekte van Erdheim-Chester.

