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NIH Researchers Educate Doctors About ECD in New Orleans

NIH Researchers Educate Doctors About ECD in New Orleans

Dec 31, 2017

Erdheim-Chester Disease and the NIH Undiagnosed Disease Program were the topics of discussion at the joint LSU and Tulane University event.
Residents at LSUHSC Shreveport Learn About ECD

Residents at LSUHSC Shreveport Learn About ECD

Dec 31, 2017

“Erdheim-Chester disease: Characteristics & Management” is presented by Filip Janku, MD, PhD
ECD Care Center Network Expansion Possible Because of Donors

ECD Care Center Network Expansion Possible Because of Donors

Dec 31, 2017

Funding from ECD patients and their families and friends opens access to treatment facilities regardless of patient location.
Rare Disease Care Network Grows to Help More Patients

Rare Disease Care Network Grows to Help More Patients

Dec 31, 2017

The Erdheim-Chester Disease Global Alliance adds four new ECD Care Centers in Canada and Europe.
Zelboraf Being Considered for FDA Approval

Zelboraf Being Considered for FDA Approval

Dec 31, 2017

FDA Grants Priority Review and Breakthrough Therapy Designation for Zelboraf (vemurafenib) in Erdheim-Chester Disease with BRAF V600 Mutation.
The ECD Global Alliance Welcomes Israel ECD Referral Care Center

The ECD Global Alliance Welcomes Israel ECD Referral Care Center

Dec 31, 2017

Assuta Medical Center joins an elite group of hospitals skilled in treating Erdheim-Chester disease patients.
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