We are excited to announce that registration is now open for the 2026 ECD Global Alliance Patient & Family Gathering, taking place in Birmingham, Alabama! Early bird registration is available until February 1, 2026. We encourage you to register early to take...
Living with Erdheim-Chester Disease (ECD) can be overwhelming. As a rare and complex condition, ECD often leaves patients and caregivers feeling isolated, uncertain, and unsure where to turn. The ECD Global Alliance (ECDGA) support network exists to change that—by...
We are pleased to announce that registration is now open for the 2026 ECD Global Alliance Medical Symposium in Birmingham, Alabama. This important annual event brings together clinicians, researchers, and medical professionals dedicated to advancing the understanding...
The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce the appointment of Jerome Henson as its new Executive Director. Jerome brings with him more than 30 years of leadership experience in education, having served as a teacher, principal, and...
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to open nominations for two important annual honors that recognize individuals making a meaningful impact in the ECD community through medical awareness, advocacy, compassion, and service. Together, the Mark...
