Join us for the 2026 ECDGA Fun Run, Walk, or Roll happening June 1–30, 2026! This month-long community event is a fun and meaningful way to support individuals and families affected by Erdheim-Chester Disease. Participants can complete their miles anytime, anywhere;...
The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2026 Global Steps Towards Awareness & Hope Virtual Fun Run, Walk & Roll! From June 1 through June 30, 2026, we invite YOU—patients, caregivers, supporters, and advocates around the...
A look back at the moments, milestones, and messages you may have missed. As 2025 comes to a close, we’re taking a moment to look back at a year that brought connection, education, progress, and support to the ECD community around the world. Whether you’ve been...
This is a final and important reminder that February 1, 2026, is the deadline for ALL submissions: registrations at the early bird rate, award nominations, abstracts, and financial assistance requests related to the 2026 ECD Global Alliance Medical Symposiums....
This is a final and important reminder that February 1, 2026 is the deadline for ALL submissions: registrations at the early bird rate, award nominations, patient posters, and financial assistance requests related to the 2026 ECD Global Alliance Patient & Family...
