Rare, But Not Alone

Rare, But Not Alone

Rare Disease Day is observed every year on the last day of February to raise awareness for the millions of people worldwide living with rare diseases. ECDGA is proud to stand with individuals and families navigating rare diagnoses—offering support, education, and...
Abstracts Due February 1 for the 2026 ECDGA Medical Symposium

Abstracts Due February 1 for the 2026 ECDGA Medical Symposium

Reminder: Abstract Submissions Close February 1, 2026 The ECD Global Alliance invites clinicians, researchers, and medical professionals to submit abstracts for consideration at the 2026 ECDGA Medical Symposium, taking place on May 1, 2026, at the Marnix E. Heersink...
We’re so close – and we need you!

We’re so close – and we need you!

Of our additional $30,000 Impact Challenge, the ECDGA community has already raised an incredible $28,950. Today is the last day and we are only $1,050 away from meeting this challenge. Every dollar donated will be matched dollar for dollar, instantly doubling your...
We’re So Close — Help Us Cross the Finish Line

We’re So Close — Help Us Cross the Finish Line

Created using the Donation Thermometer plugin https://wordpress.org/plugins/donation-thermometer/.$30,000.00$30,000.00Raised $30,000.00 towards the $30,000.00 target.100.00%In just one week, the ECDGA $30,000 Impact Challenge has brought us to an incredible $27,000...