知識淵博的醫生

Medical Professional Contacts

Medical Professionals with Erdheim-Chester Disease Knowledge/Experience

Often times a patient cannot travel to an ECD Care Center. In this case a patient may need physician close to home who is knowledgeable about ECD and the care of someone living with ECD.

The ECDGA Patient Navigator has access to information about physicians outside of Care Centers who are familar with ECD. If you are a patient or family member, and need information about physicians outside of Care Centers, please contact us.

If you are a medical professional and would like to include your name and contact information to the ECD Global Alliance to help patients find you, please contact us.

如果您是一名醫療專業人員，並且有興趣將您的機構加入 ECD Care Center 轉診網路，請聯繫我們 。

每個護理中心都必須致力於確保 ECD 患者得到專家級的護理。

成為護理中心需要填寫一份自我提名表格。要求的資訊包括提供數據，以表明您的團隊能夠為 ECD患者提供適當的護理和支援。