Time is ticking. The ECDGA Get Ready to Run, Walk & Roll for Hope Fun Run ends on July 15, and we are so close to our goal. With $20,999.62 raised, we are just a few steps away from reaching our $25,000 target—but we need your help to get there. Every registration...
The ECDGA Virtual Fun Run/Walk/Roll is picking up momentum with participants from 25 states and counting. We’re on a mission to fill in the entire U.S. map, and we’d love to see your state represented. Whether you walk, run, or roll, you can make a difference. Join us...
When it comes to raising awareness for Erdheim-Chester Disease (ECD), every mile counts—and every method of movement matters. In the 2024 ECDGA Fun Run, one incredible team reminded us all of that in the best way possible. Meet Team Peddling Froetschers—a powerhouse...
Our host from Bellvitge University Hospital, Dr. Xavier Solanich, along with ECDGA board member Dr. Juvianee Estrada-Veras, warmly welcomes patients, families, and medical professionals to Barcelona for the annual Patient and Family Gathering. This special event...
The ECDGA staff and volunteers are hard at work making final preparations for this year’s Erdheim-Chester Disease Medical Symposium. Taking place at Bellvitge University Hospital in Barcelona, this annual event brings together leading medical professionals from around...
