ECD Awareness Week is September 8–14, 2025, and we need YOU to help raise awareness and show the world what it means to be part of the ECD family. Awareness Week is important because Erdheim-Chester Disease (ECD) is so rare that many people— even in the medical...
Erdheim-Chester Disease, also called ECD, is a very rare kind of blood cancer. It is so rare that some medical articles estimate that only about 2,000 cases around the world have been documented. Our bodies have special cells called histiocytes. Normally, these cells...
https://www.erdheim-chester.org/wp-content/uploads/2025/08/A_realistic_cinematic_202508181055_yfmfz-1.mp4 The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to introduce our newest team member—Ziggy the Zebra! Ziggy isn’t your average zebra. Ziggy...
Dr. Gaurav Goyal of the University of Alabama at Birmingham (UAB) is pictured here proudly supporting the Erdheim-Chester Disease Global Alliance (ECDGA) during his time in Barcelona. Dr. Goyal has been an active voice in the ECD medical community, and his continued...
Each year, the Erdheim-Chester Disease Global Alliance (ECDGA) hosts a singular event that brings together physicians, researchers, and care specialists from across disciplines and across borders. The ECDGA Medical Symposium is not just a scientific meeting—it is the...
