https://www.erdheim-chester.org/wp-content/uploads/2025/09/Ziggy-Spreads-a-Heartfelt-Message-of-Gratitude-video.mp4 Ziggy the Zebra, the beloved mascot of the Erdheim-Chester Disease Global Alliance (ECDGA), is here with a heartfelt message of gratitude. To our...
Erdheim-Chester Disease Global Alliance Announces 2026 Patient & Family Gathering and Medical Symposium Birmingham, AL — The Erdheim-Chester Disease Global Alliance (ECDGA) and UAB School of Medicine invites patients, families, healthcare professionals, and...
https://www.erdheim-chester.org/wp-content/uploads/2025/09/2025-Awareness-Spreading-Awareness-One-D.mp4 Ziggy the Zebra is back with a special challenge for Erdheim-Chester Disease Awareness Week—wear your stripes! By putting on stripes this week, you’re showing...
The July 31 Canada Monthly Chat was a truly special event, featuring guest speaker Gary Tobin, who shared his extraordinary journey of resilience and survival after being diagnosed with stage 4 Acral Lentiginous Melanoma. This session was recorded so the broader...
